Merry Christmas!

Wednesday night, they moved him to a regular room. Thursday night they said they'd take him off the oxygen and see how he did, however, that didn't happen until Friday morning (Christmas Eve). The doctor said the oxygen levels would drop while he slept, so they wanted to see how he'd do sleeping before they okay'd him to go home. Well, it's kind of hard to tell that if you don't sleep! His first 15 minute nap showed that his levels dropped and we woke him up trying to get the oxygen back on. But, when he woke up, his levels went back up, so we left him alone. His next nap didn't come until very late in the afternoon/evening. His levels stayed where they should, so the doctor at the hospital discharged him. We left the hospital by 8 p.m.

He's very weak. He tries to sit up, but gets worn out easily. I'm not sure how much weight/muscles he lost, but I know it will take some recovery time and some good eating to get back to 100%. He has an inhaler he will take twice a day and the breathing treatments if his wheezing comes back. The doctor said if it comes back and three breathing treatments in a row don't help, to head back to TCH. But HOPEFULLY it won't come to that! We are going to try to stay indoors and he is not going back to daycare until flu season is over! His body can't afford to go through this again! Thanks so much for all the thoughts and prayers over the past 10 days. He's our little miracle baby!!

Even better news!

Today, his chest tube was removed! This means he is waiting to be moved back to the pediatric unit like he was in before. Conor said he is acting more like himself, so I think all the meds are finally wearing off.
Per my sister-in-law's request, I am adding an update on baby Jack too! haha. He made the most awesome robot from nothing but pieces of whatever it was at Space Center Houston yesterday. I was freaking out that he hadn't come out of the kids' play area for almost 40 minutes, but was afraid to go look for him, thinking he might come out while I was gone. I finally just went searching b/c I was ready to go and found him behind the play area all by himself building a robot. He said he "told me he was going to be there." So he built this from scratch. It fell apart a few times while I helped him finish it up so we could leave, and he knew exactly where to put the parts back. He even knew the direction the motors had to be facing for the arms to turn like he wanted them to. Much thought was put into this and he was very sad he couldn't bring it home with him or even put legs on it.
The next video is self-explanatory and hilarious too! Needless to say, we had a blast! Thanks Big Jack for the free tickets!

Day 6 of ICU

Trevor was up much of the night. He wasn't fussy unless a nurse or doctor came in. He just stared around. They say when they come off the meds that he was on, this usually happens. He's been sleeping so much lately, he probably isn't tired. They just gave him a little bit of morphine so he wasn't just quitting pain meds cold turkey. He's breathing good, just a little fast. No word on the chest xray from this morning, so hopefully that's a good thing. Here's another picture of him, but looking a little happier than the first picture.

Good news!

This afternoon, at 3:30. they took the breathing tube out. It was funny because just this morning, they said it wouldn't be able to happen today. His numbers had been dropping this morning, so I'm not sure what made them change their mind and try. They left in the tube in his chest just in case they need it again (it helped somehow reinflate his lung). It's been 5 hours now and he's doing great! At first he was exhausted and fell asleep. Then he woke up and seemed happy, almost smiled, and was squirming like crazy! Now he's back asleep, hopefully for the night, eventhough the nurse still has to come in and look at him.
I haven't been able to hold him since Thursday, so hopefully tomorrow they'll take out the tube and he will be a bit more mobile. They took a chest xray about an hour ago, but have not looked at it yet, or told me at least. They said if it looked ok, he'd get to eat. They also took out the feeding tube, so I guess he'll get a bottle! The first one since Wednesday!

Santa visited, again!! He got a stuffed Mickey Mouse and two toys from him! So far, he's gotten more presents from the Santa up here than we got him! This picture is right after they took all the tubes out.

Update

Trevor's pediatrician stopped by this morning and said he's looking much better. She hadn't seen him since the craziness on Friday. His right lung has reinflated, and he is on minimal ventilator support. We'll see how he does as they slowly decrease that support. The chest xrays have looked good since Friday and his lungs are finally starting to sound better!

Back in the hospital

Just over a year after coming home from TCH, Trevor was back in it! Ever since he got sick at the end of October, there always seemed to be something wrong everytime we turned around. He'd get better for a few days, but then have a fever for a few days. I think the earache came back once, then he got a rash everywhere. The doctor said it was a virus and that the rash was a sign it was almost gone. Then within a week, he started having a cruddy cough. The doctor said this time he almost had pneunomia and he started breathing treatments at home. I think that time, he ended up missing 8 1/2 days of daycare within two weeks. I think he went back the week after Thanksgiving. Then was okay until last Saturday, the 11th. He had a fever again. The nurse said to give him Benadryl for some reason. Then the next day, he started wheezing, so we started breathing treatments. Monday got worse and I almost took him to the ER, which I probably should have, but we waited until Tuesday morning. The doctor said he had the flu and pneumonia and was sent straight to the ER at TCH. He spent 6 hours in the ER before we got moved to a room. Then Wednesday was an okay day. He got a bear from Santa and some building blocks. This picture was taken before he went to ICU. They tested him for RSV and said he had that. They haven't mentioned the flu since Wednesday, but I think he did have that and they gave him Tamiflu to treat it. Thursday night, I noticed his breathing was much worse and told the nurse. They looked and said they'd keep an eye on him. Well, Friday morning, his vital signs dropped and he was moved to ICU.

They hooked him to a breathing tube and took a chest xray. His lung was leaking air out into the chest cavity, causing an air pocket that made the lung collapse a bit. They had to insert a tube in his chest. The first two attempts were not successful at removing the pocket of air, but the third time worked. He still has the tube, I'm not completely sure why. Since he looked so pale, they had called me to say he might need a blood transfusion, but after testing his blood, his levels were okay. His pediatrician said he's always that pale, then they realized we are too. Saturday and Sunday have been stable. They put in a feeding tube yesterday and are giving him formula. They are slowly trying to decrease the amount of oxygen he is getting. Once the breathing tube is out, he can go back to the regular room. No word on how long it'll be.

He's walking!