November 29

Trevor's doing great. The OT tried to feed him a bottle yesterday, but he wouldn't wake up enough. He still took 10 ccs. Today, he was wide awake at 11 am and when she came at noon, he took about 40 ccs. We were all shocked! It is the thickened milk, but he didn't have any problems. He just got sleepy so she stopped. I think his feeds are up to 56 ccs which is almost 2 ounces. They stopped the diuretics which was to prevent fluid in his lungs on Friday. He is 6 pounds 11 ounces. We thought he might come home in the next week with the feeding tube, but there is a new doctor for December and he seems to act like we are going to wait until he takes all his feedings by bottles. But the nurse still showed me how to put the feeding tube in so we'll see. We have CPR training Thursday and we have to schedule a time for the car seat test. They make sure it is in the car correctly and will see if he can sit in it for a while and still keep his vitals stable. So we're in the process of getting him ready to come home, just waiting for the okay.

Happy Thanksgiving!

Today, the hospital allowed siblings to come from 9am-9pm. Jack and I went this morning. He was so excited! While I was talking to the doctor, who is extremely nice, Jack was copying everything Trevor did with his hands.

November 24

The feeding Monday went well. It wasn't even a half an ounce though. He's doing great without the oxygen. Here are some new pictures. He's 6 lbs 9 oz.

November 21

Yesterday evening they took Trevor off the oxygen and so far this morning he's doing great without it. The swallow study and upper G.I. was done Thursday. It still shows the aspirations. But they said they plan on thickening the milk and giving him one bottle a day starting Monday. They think this will help.

November 16

Trevor is now 6 pounds 1 ounce! They are going to do a swallow study on Thursday and depending on how he's doing with swallowing, they will decide when to start the bottles again. The OT has been observing him every day and I think giving him a small amount from a bottle to help him take it the right way, so hopefully he's improved. More updates on Thursday...

November 15

I talked to the nurse practitioner on Friday and she said they might try the bottle again on Monday. They took him off the caffeine on Thursday. He's almost 6 pounds! They tried to take him off the oxygen last week, but he still needs it. He's on the lowest amount possible.

Trevor was wide awake today! He was in a swing and mad when I came. But as soon as I said something he stopped crying. The daytime nurse said they'll probably wait one more week before starting the bottle feeds again. His feedings are up a little to 47 ccs.

November 8

Last Thursday, the doctors stopped Trevor's bottle feeds because of the drop in his heart rate. They might continue them this week. They did a swallow study and saw that the milk is aspirating into his lungs. The occupational therapist will be working on his sucking with him (not really sure what all that involves). A neurologist came and did a neurological examine on him last Wednesday and said he is at low risk for developmental problems. Here's a picture - it's pretty dark though!